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The decision of the transplant

Our life was reorganized once again: my business adjustments to the health of Priscilla, his decision on what to do, to feel active and involved life, without sacrificing its care, but after the big crisis despite the intensification of respiratory care and physical therapy, functionality 'breathing continued to worsen. The new primary center, already 'admission during the crisis, he suggested putting it on the list for lung transplantation. The idea there was both horrified. It was the fall 1999.
knew it could be a good chance, 'but maybe not. They were the first transplants of lungs. Now he speaks as if he had any therapy, surgery and indeed has made great strides, many more 'medical treatment. We refused, we were going to cope without transplantation. And then there were so many promises of new drugs, gene therapy .... Over
the years, but 'the curve of spirometry was always more' down, were two other major respiratory crisis, Prisca increasingly struggle '. After the third major crisis, despite being able to remove the oxygen in hospital, after a couple of months at home, had to return to hospital and put the oxygen fixed. At that point we had to understand and accept that the only chance 'of life was a transplant. We decided to do in Bergamo and went to take the exams to be put on the list. It was early summer 2005. We returned home and again tried to do everything we could do.
Meanwhile, my marital relationship had reached historical lows: he was always more 'months abroad, with the excuse that he did not want Prisca to miss anything, so 'was also nine months a year in Vietnam, with 3:00 to 4:00 within a few weeks in the summer for vacation in October at the show in its industry, Christmas, Easter and maybe . Our relationship was reduced to a spa, the only argument that we shared was the home of Prisca and Health and the activities' inherent.
I was entered into a fierce depression, Prisca looked at me and said, "Look at them, 'as you put on, do something." I guess I was too heavy for her and very little help to see me so '!
I could not find something to hold on: the health of Prisca degenerate spa marriage, work, now I was paying contributions imps just ... A friend, my head 'and told me that the firm where she worked were looking for someone with my professionalism' among other things I had worked years earlier in the design studio, and told me that if I had brought my job. It was difficult for me to leave home alone Prisca, but my presence in these conditions was not very helpful. And so 'I returned to do my job. Then, as often Prisca had a fever and was not really possible for her to stay home all day alone, I asked a friend home if she was willing to keep her company in the morning, Prisca always a good time for more 'difficult and prepare lunch. You agree 'and it was a good thing. Prisca was happy 'cause he knew he was small, we had been on holiday several times together, Memi and had two children of the same age ', so he told her and she distracted them listening to their stories. When he was better, Memi accompany a walk, or market, or was there ', the delicacy prepared some good and gave her if she needed help. In this way, I could leave home quite calm, asking God's protection on Prisca. He returned on the afternoon from 17.30 to 18 and help with physical therapy and while we talked, talked, talked of .... everything, including the transplant. She once told me: "But when I have 'done the transplant and will not have' more 'to the physio, we will do our chats too? Otherwise I miss you ... "

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Everyday Life

Our life went on between the ups and downs related to the disease, when Priscilla was better we could do more 'things, follow shows, our spiritual pursuits, when he was a bit worse' less . In any case we always friends back home. The year after he finished high school, 20 years, Priscilla was the first major respiratory failure. He had spent the summer so 'so', that year in September we were deciding to seek shelter, when suddenly one night, Prisca did more and more 'hard to breathe, it seemed that the bronchi were glued in and did it hard to open to let in air. We went to the hospital near his home, was hospitalized and after some days to reach Verona, seeing them 'his condition worsened and that's it. I had just started to work in a Modena, one of my many attempts to realizzami with work, I left everything to assist you.
Go home trying to do even more ', I went back to work at home as a freelance artist. Then I organized things in our house to make sure that Priscilla could participate in activities 'group without the burden of making the move, since every minute was precious, the time to devote to health care became more and more' extended. For example we organized a meditation course and every week we find ourselves in the attic, with our friend Mario, who was driving meditations. We spent many nights out together in this way. The Group of Friends of meditation, mostly women, and 'remained together over time, and yet today we are here to ponder and to pray, to chat and carouse. In another time I had organized a yoga class, this has been less successful. And then a course in belly dancing. And the evening at the club with belly dance show .... everything 'always a bit' of trouble to be able to put all the things of the day ....
Life went on, with the daily problems of all: the commitment, relations with other people, with the contingencies that you have to do normally. After high school, brilliantly, despite the absences and difficulty 'of a girl who gets sick often, so in addition to the study and school attendance, the time to devote to health care, Prisca took some' time to decide what to do from there onwards. First we took the license and, strange but true, for she was always as 'brilliant in school, the guidance was not as' instant ... but even this hurdle was overcome in a few months. Then his decision was to make the Craniosacral Therapist and Naturopath. He was a few years of therapy that was experimenting on himself and made her feel better: she had convinced herself that could help many people to feel better and this loved it. When I start 'to practice on people, he said: "When a person comes back and tells me that after my treatment is better, you can not imagine how I feel inside, the joy that comes to me ... "Of course it was a difficult choice: you can not 'do therapy on other coughing, the person being treated does not relax and then who is practicing can not 'fully concentrate on what he is doing, and in this field, to work perfectly, you must be concentrated to one hundred percent. So even here problems had to do careful physical therapy on himself before treating other people, and sometimes this exhausting the physiotherapy and you needed some 'recovery time, but it was not always possible, because' there was the appointment and the person would come in and then had to leave quickly and so ... ' bottles of water always at hand, and pads of the Resolute, to calm the urge to cough that he could get sudden ... Despite all that ', found on the other therapies that were working, there was the passing word and people returned or sent other 'cause they were good ... But of course he could not work Prisca more 'than two or three hours a day ... at times, not always, and going forward, compromising more and more' respiratory function became more and more 'difficult for her. The latest treatments has practiced the tube connected to oxygen.