Accept the fact of having to live with a disorder limiting and 'difficult, especially when the information, Statistics say that this dysfunction leads to a longer life 'or shorter. None of us knows what will last 'his life, the social convention is that a child grows, you become an adult, with all that implies, that' study, work, career, get married, proliferate, you get old and then die happy to have done everything '. This is' the goddess socially accepted and acceptable. But many times does not go that way, and then we are sure that the functionality to 'correct the universe, especially the spiritual part that is' we, that is 'I, this is the only chance' right?
A person who has the fc apparently has nothing, apart from the fact that cough often looks and 'a healthy person, the intelligence and often 'above average. Prisca and 'always been a beautiful baby and grew up, a beautiful girl, alarm, and sociable with a sense of humor. Personally I have always done everything 'cause he did not feel different from others, and not having anything different in appearance, helped. The difference is 'all inside, subtle, subtle, there are those channels of internal secretions, which become clogged more and more', in time, in the bronchi, pancreas, sometimes in the liver, depending on the case, there are also great similarities in differences. For a time 'of year was quite regular, frequent winter bronchitis quite a few outbreaks over the years, but in our areas where the winter and 'long, cold and wet, it happens to many children. Growing up, the matter should be improved and the children usually find strength. So many people told me this thing inside me I knew it would not be so 'in our case, so' I had explained. Sometimes I wonder if with all this information we have not been conditioned that he must go in a certain way and so 'and' round .... but in fact there was also told that those who are well enough and ... and 'I have known true of adults with Fc! As the years passed, I saw that while the children of his age' began to feel better, she did not improve, even a cough accompanied her more and more often, despite the physiotherapy the aerosol, on the various medicines ... Prisca had a rash when I was 8-9, with lots of red dots that gave me severe itching. I went to the family doctor who gave me a cortisone cream. I do not step '. After ten days I went to the doctor who did not understand what it was and so 'sent me' by a dermatologist, who told me I look 'under the microscope and assumed it was a stray and gave me two cortisone ointments. In the meantime I've had in my hands a book by a Swiss physician, Dr.. Birker-Benner, who in addition to cure disease with nutrition, also taught the natural treatments and between the hot and cold sponge baths and showers in Scotland. Well, that night, exasperated by itching and not at all convinced by diagnosis of this dermatologist before going to bed I made the sponge and hot and cold around the neck and chest where I had this sort of rash. The next morning was much less angry when I took over a bout of itching went to the bathroom and passed. The next day, to avoid flooding the bathroom, I began to showers in Scotland. Three days time and I was gone almost everything. Without the double cortisone. From there I started thinking that perhaps Prisca could feel good about natural remedies. And so 'I began to search for information in all directions, to read all the books that I found on remedies and natural cures. As I 'said in previous posts, we have tried everything, until the first' I did it I was small, nutrition care in particular, the search for supplements, foods that could aid in enforcing, then great start to 'take an interest also for its own account. I must say that at first I was really excited and we just hoped to get good results with this treatment. Unfortunately, cystic fibrosis, and 'a complex issue and the results were made to wait. Gradually I had to accept the fact that the dysfunction was really was not contol with good will 'and the care that would help a frail physical simply, in this case were not decisive, MOST IT' gave some relief. One thing we've ever tried, and 'was to take the natural substances and associated at high doses, as is done with the antibiotics, Now, in CF care, I remain convinced that in nature there is everything you need, we do not know you could use it perche'quello and 'been set aside to make room for research in recent years and' directed towards substances synthesis, as most 'easy to manage (so' they say), patentable and therefore more 'profitable for those who produce them. To think of what ', the care he could see positive results in a relatively fast, were those. Even if, in the long run, the effect did not persist. Sometimes I wonder if it was a mistake to abandon the treatment as we experience when we did not see significant results, maybe you should go too for many months, but it 's difficult when the results that initially promise much, then there are not many, I say consistently, but only a little visible! At one point we had become friends with wonderful people who have a firm of herbal products and also they tried and sent to Prisca products that it deemed 'useful, such as the alga Spirulina, an excellent integratote, certain enzymes of plant origin, the best that nature can offrire.Una of these substances that we had had high hopes on the grapefruit seed extract. This substance experienced by friends and by me personally, was effective (I have a urinary tract infection resolved very quickly). And then the Echinacea. And the Ribes nigrum. I think that she was a little girl, we'll have consumed a few hundred bottles. It has an anti-inflammatory effect, should be the equivalent of natural cortisone, without its side effects. About me worked fine. At one point I had read the book by Father Romano Zago, the benefits of Aloe. I bought the plant and started making preparations, as indicated in the book. For a few months Prisca took this kind of syrup. What about: the effects, if there were very thin ... maybe take a little 'weight, a good supplement. Today, the Aloe plants in my house are dozens, I could put myself in sales when I purchased the first was too expensive. And syrup snails. Things to physical work properly probably do much good, but we saw very few side effects. For some time we tried to integrate the power with so many other things, in the form of capsules, syrups or powders that are mixed with food. But in the long run was a stress that was likely to be counterproductive, given the fact that pancreatic extracts can not be certain to abandon, at least not in his case, and when he already 'you swallow a dozen capsules per meal, and add several other' heavy. Not that I stopped using everything I had learned and to be with antennas mo 'radar to pick up anything that could help to mend my Stella, but meanwhile I tried to stop feeling any loss time I had to use the antibiotic with poor results ... I have to say, 'cause even in recent times, as now I had to accept that without antibiotics Prisca I lost some time, always troubled me having to prepare an IV of antibiotics and get vedergliele slowly in the veins .... Yet, this was given to us and we had to do with this ... With each cough I would create anxiety, at one point I had to accept that the one with which we had to do was this thing, this bastard disease, which at the time was not eliminated, and that we could crush us and live in anguish costantentemente or accept it and live the best all that one could indeed live up to, the less free time care leave, not just, even to the care we take care to always have good music in the background, in environments where we were or print colored images to remind us that life and 'a jar of phlegm, but also a field of sunflowers or the turquoise sea, or a snowy mountain with the rosy tints of a sunset, a lake full of water lilies .... the flower of life for Hindus'.
We had chosen to go to the max! Of course, always within the limits of what we had been given ... This concept was so
entered our head that we did not limit us from the banality 'of what others might think, for example to go around with the stroller or the drip, and so we went to conferences to do with the drip , attached to the handle of a window or under a nail. With this thought, we have many more 'things of us, despite the limitations, many other people full of health which are allowed to live! Once Prisca took the car, went 'to the Festival of Poetry in Castelnuovo Rangone, a village not far from our house, with the stroller. There was Sanguineti, the poet himself, what she had studied in high school could not miss! More 'I joined too late. The conference met prof. Italian language in high school who had Prisca, who see in them 'with a lot of oxygen, was moved very much and said that when he met his students at these conferences, he felt he had done its job well. Here is a case in which a passion to do something that is good not only for themselves but also to others!
